Cardiac Unit Valentine

 


Happy Valentines Day!
Sunny got a warm bath that almost put her to sleep. Then she got a massage & workout with Physical Therapy that knocked her out completely!


Sunny girl has been pretty stable lately. They're keeping an eye on her right ventricle as it showed in her echocardiogram that it wasn't expanding & contracting as much as it had been.  But all the blood work markers are indicating that her heart is trending in a good direction. We're wondering if it was a result of the funky breaths the old ventilator was giving her, but the Dr's aren't sure if that would do it.  

This week, she's been working on getting off drugs! We're alllllllllmost at the end of it - they've gotten to the lowest dose, so now they start spreading the doses out further & further apart. She's not ignorant to the fact that they're giving her less. Withdrawal to babies looks like puking/gaging, hiccups, sneezing, yawning & general fussiness. All of which she's experienced. It's sad to watch, but it's for a good cause!

The goal for now to for her to continue to grow well while keeping a close watch on her right ventricle, and for Sunny's parents to finish their trach education. Hopefully, we'll finish those up in the end of March & then if she's still doing well, we can start talking HOME! We'll need to come back before she's a year for her heart surgery, but since it's not an urgent matter, they can wait until she's grown some more!


Prayer requests:
- for Sunny's heart to continue to improve function.
- for her to grow strong & healthy!
- & for her parents learning how to best & safely care for her at home:)


Chris & I are at our house this weekend for a wedding! My mom is with Sunny for us, & we're so gratful for that.  Even though we know she's got the best nurses, it eases our hearts so that we can enjoy a little taste of our old normalcy. Oh, but I completely forgot to update the blog Friday because we were running around, but thank you for checking in on her❤️ We continue to be blown away by all the love and support we're feeling.  Thank you. 

Love, 
Chris, Alyssa & Sunny

Being able to have more than two people back at once has been a party!

Enjoying her tummy time a little tooooo much😴

I can't with the lil hand 

Lol she was sticking her tongue out at him, so he gave it back to her

 
She's always loved having her 
hand up by her face🫶🏻


🎀

Majo here to babysit!

The Valentines we gave to our nurses, doctors, cleaners, therapists, ChildLife etc. 
- the unit is called 2B & I'm so proud of myself. 


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