April Showers

 


    Sunny has been reunited with her beloved baths! She was getting a weekly bath on Fridays the last time we were in 2B, but then went without for about a month in the CICU. Sunny was having a rough  & fussy Tuesday morning, so OT Jackie came in with some bath supplies to help. Sunny went from crying, to falling asleep in the tub. After getting settled back into bed, she took a really goooooood nap. 



Other than the bath, this week has been relatively uneventful. They went down on some meds & her sodium supplement. 

Primarily, we're still waiting on General Surgery about when would work for them for G-Tube. Once they tell the team here, the Cardiac Anesthesia team has to then find what coordinates with with their schedule....so. it's a real speedy process.


Yesterday, Sunny's heart rate was more elevated than her usual. The cardiologist on service this week called for some blood tests, an x-ray, and a urine test to try and figure out why. Other than her heart rate being higher & her being more fussy, she's not been showing any more signs or symptoms. Most everything came back unalarming. They sent a sample from her trach tube, and a bacteria popped up in that test - they are going to start her on an IV antibiotic for a few days, and see if that helps. Hopefully it does! It's sad seeing her sad. 


In other news, her disco ball is the talk of the unit. Everyone was used to it in the CICU, but over here, they are obsessed! One evening, the night nurses said Sunny had them cracking up -  they had to take it down because she was staring at it & wouldn't fall asleep. 


Prayer requests:

- For Sunny's heart & health.

- & For Chris & I; We've been here for almost 5 months and are feeling it. 

Thank you!

Love, 
Chris, Alyssa & Sunny




Lots of naps were had, this week.  

Always got a hand on her trach

Party at the disco

Thumb chewin'

Didn't want us to lose the suction catheter. Just trying to be helpful. 


Uncle Luke snuggs 



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