Holey Friday

 


 Baby girl is getting a G-tube today!! 


    We've been waiting on this for a whiiiiiiiile - the first time we were in 2B, we were gearing up for the G-tube when they found the decreased heart function. That's when they pumped the brakes on that procedure, & investigated heart things back in the CICU. We're excited for Sunny to be free
of another face tube, and no longer need to be put in "hand jail" socks to keep her fingers
from pulling her NG-tube out.


    The G-Tube procedure was supposed to be on Monday, but last Thursday, they discovered she had a UTI & bacteria in her trach, so they put her on antibiotics for the weekend. Then, as she finished that up, they were noticing flecks of blood in her stool. After two rounds of x-rays & ultrasounds, they ruled some things out, and decided it was most likely her gut flora getting upset by the antibiotics and causing inflammation. The GI doctors were asked to give input and, after feeling her tender & adorable tummy, they gave the green light for the Friday procedure. 


This is a huge step in our journey home. Now, they're able to have a better idea of our timeline & are reaching out to the In-Home Nursing agencies. They've mentioned to us that our area is tricky to staff, and that could possibly delay our getting home. 

Additionally, Sunny was evaluated by Physical & Occupational Therapy, as well as remeasuring her noggin for a helmet.  They think a shaping helmet would help, and have already seen ways that her favoring her left side is impacting her muscles. So, get ready for cute helmet Sunny pics. 

Get. Ready. 


Prayer requests:

- Sunny would recover well after her procedure. 

- Homeward bound preparations in general, but especially finding in home nursing care. That staffing won't delay us much and that we'd get paired with someone amazing!


Thank you!

We've been feeling drained and really appreciate your care & support!!

Love, 

Chris, Alyssa, & Sunny





JR, one of our favorite cleaning guys, bought this bracelet from his niece to give to Sunny🥹

So big, & crooked & cozyyyy.

🎀🎀

Fingy chewing

Had a bath Thursday evening, & Papa was there & snapped this cute Pic!

She spent about an hour smacking her disco ball,  but Papa had to raise it so she'd go nite-nite.




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