Slow & Steady

 



5% chance of survival looks good on this 5 MONTH OLD!?


She's doing much, much better this week! She's far more content, and is closer to herself.
This week, she finished up her round of antibiotics to fight off the infection in her gut. Her G-Tube is still healing - I think the cite got a little wonky from her belly swelling with the infection, so they placed a ND tube for starting meds/feeds. Previously, she had a NG tube which went through the nostril into her stomach. The ND tube follows a similar route, but goes a tad further just into the small intestine. The General Surgery team wanted to give her belly & stomach more time to heal, so this tube allows food & meds into her system while bypassing her stomach. 

Monday morning, Dr Stout commented on how big Sunny was, "...usually we can grow babies wide, but she's growing LONG too!?" 
I don't know if it was the position she was laying in, but two more providers came in throughout the day and also commented on her size. Babies with heart issues can have a harder time gaining weight, and Sunny has her fair share of issues, but growing (thankfully) has not been one of them!


They'll continue gradually switching her back to her regularly scheduled meds and feeds. They are starting slow, and cautiously increasing things back to their normal doses. So far so good, so hopefully it won't be too much longer before we're able to go back to 2B. 



Prayer requests:

- Sunny's belly/stomach/digestive system to heal, and continue to work well!

- Nurse Kathy's family, as she unexpectedly passed on Easter weekend. She had Sunny multiple times, and actually had gifted Sunny an outfit from her own personal stash of medically minded made clothes.

(baby Sunny rocking her outfit from nurse Kathy)


Thank you!! Sunny having a good week and the weather this week have been so refreshing. Some much needed SUN all around:)


Grumpy Sunny Bunny

Easter Basket #1

#2 From Child Life

#3 From L&D nurse Randi


This was from the day that everyone commented on her size💪🏻


🌸


Mornings with Yaya

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