Happy 4th Of July!

 


Last week left off on a weird note - she had been doing good and boring like we like it, but then took a turn for less boring. 


Sunny was puking up a good bit of what was in her stomach, so they eased off of milk and tried an electrolyte fluid. She did okay with that for most of Friday day, but Friday night she couldn't keep anything down. After she got all the contents of her stomach out, she was able to sleep. They started her on IV fluids, and began to brainstorm. While she felt warm to my touch, she was still reading at normal temperatures. She had a higher resting heart rate and was needing more frequent suctions, but all the tests they ran had been coming back normal(or at least normal for Sunny:).
Eventually, they decided to culture her trach contents, and urine. Those came back with an uninvited bacteria, so they began antibiotics.  She quickly began to slowly improve every day, so they slowly began to reintroduce the electrolytes & then milk again! She's still on her course of the antibiotics, but her temperature and heart rates have been back to her normal.


This week she got to spend some time with her Majo(my mom), as Sunny's parents took a few days away with Chris' family! It was amazing to spend that time with everyone, it was much needed and very refreshing. It felt weird to be spending time with family without Sunny there, but it was SO nice to know she was living it up in Majo's care - LOTS of snuggles, books, movies, and songs!  

Another thing Sunny has been doing that the doctors are keeping an eye on are some pauses in her heart beat. They've happened about once maybe twice a week, and the doctors say that she's been tolerating them well. They've given us the rundown of ways they could treat it, but she wouldn't need any of them after her corrective surgery & the doctors don't think they need to intervene at this point.  


Prayer requests:
- For us to be able to find a couple more in-home nurses to help us in keeping her safe at nights,
- Sunny to heal completely from her infection. 


Thank you for your prayers!! We really feel them, & we are so very appreciative. 

Love,
Chris, Alyssa & Sunny













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