Last Week of July

 



Sunny had a good week!

 She had some days of being pretty awake, and then more days of mostly sleep.  We can't tell if she's going through a growth spurt, fighting something off, or if it's just the her recent update of meds.  But other than that, the week was fairly uneventful. 

Monday was busy with some visits from Sunny's great-grandmother, grand-aunts, and her Yaya. She was an excellent hostess and was awake & content for most of their visits.


We're still aiming for a discharge of the end of THIS MONTH!? Which feels crazy. It's exciting  & scary..... leaving all our friends/the ability to have experienced medical assistance 24/7. We have an in-home nurse locked down for morning & afternoon assistance, and then Majo & Aunt Jadyn just did their first TRACH CHANGE this week!?!??!!! They did SO well, and Sunny was a peach, sitting calmly and not wriggling much at all.  

Just don't tell Sunny.....anytime we get close to going home, she likes to throw us a spicy curveball.  


Prayer requests:

- For continued health for Sunny(no curveballs 😬)

- For all of discharge things to get done smoothly!

- Sunny's friend, Kayden, who is also looking to get discharged soon. He's waiting for a new heart for over a year at the hospital. Continued health & healing for him, and for his mom during all the change within the last few weeks.

Thank you!! We really, REALLY appreciate your prayers.  We're IMMENSELY grateful, and just feel so blown away by the support we've received.   

Love, 

Chris, Alyssa & Sunny



All the nurses crack up when she sleeps with her arm over her eyes. She's a good communicator and let's us all know when she's done and wants to snooze. 


Majo snuggles
Aunt JJ snuggles

Perfection 

She got so tuckered after the Tiny-Tots playdate, fell asleep before she got into her bed. 

Sleeping through her echo


She's a sleepy hostess




Comments

  1. Jen NashAugust 1, 2025 at 5:22 PM

    I love reading your creative updates. Are you sure you don’t have a degree in writing? ☺️ I’ll keep praying for you all. Everything in the Lord’s timing. He knows best. Looks like you’re meeting some goals before discharge. Praying for the help you need! 🙏🏻 ❤️

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