Sunny Days

  SUNNY'S HOME!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Last weekend was a BUSY one  but it was for a good cause.   Chris had saved his last two weeks of paternity leave, and began that two week stretch on Thursday of last week.  That was INCREDIBLY helpful as we had discharge things to finish up, as well as running back & forth between our house and the Ronald McDonald House & hospital. We were moving our things out, meeting with people, getting boxes (& boxes) of supplies. Whosever idea it was to drop off the bulk of her supplies the day before.....I'd like a word with them.  Day of came and everything went smoothly! The transport team came and buckled Sunny into the stretcher, and we started down the hallway lined with so. many. friends.  We've worked for this for so long, I wish all of it could be easy and happy. But at the same time, it's such a blessing that it's hard to leave our team. If it was easy to leave, it...

  This week has been weird, but for all the right reasons. Coming into the hospital and doing all our normal things, and then beginning to tie up the loose ends for discharge. She's had all her normal PT & OT workouts, visits from her favorite environmental workers, rounds, and usual daily snuggles. She made her weekly standing playdate with OT Jackie, PT Marcy, and Child Life Coordinator Kennedy who brought party hats to celebrate Sunny's last Tiny-Tots session. During which, the team paused rounds, & nurses swung by so they could come watch all the cute kiddos socializing.  It's so weird being so used to seeing all of these wonderful people everyday, it was such a harsh reality when Wednesday rolled around and some of them were saying goodbye because they aren't working again until after we leave.  It really is so odd. We've been working towards and waiting for this day for so long, and it's still so hard to say goodbye. We're feeling nervous about...