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Showing posts from January, 2026

Happy New Year

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Goodness. Being a parent during the holiday season is no joke. Even with two full-time nurses giving us extra help throughout the week, it still feels like we have a million tabs open in the brain & things slipping through the cracks.  Sunny had a wonderful (first one on the outside of the hospital) Christmas!  We were able to pack all of ourselves up, drive a little over two hours in Sunny's new(to us) minivan, and enjoy some much needed family time.  We saw lots of cousins - some of them in it the first time in person(!), and took a lot of naps on couches. Sunny got some new toys and new outfits for Christmas, and a cushion to help position her more comfortably.  We were anxious about sickness as it seems to be rampant right now, but I always struggle with wanting to keep her in a bubble of safety or having her experience these things. Even when she was a tiny bean in the CICU - there was one nurse that would make subtle remarks about the visitors we had. But b...